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Category: Uncategorized

Day 686/58

Laura Gilkey on November 17, 2016

Benji slept for twelve hours last night. I could tell it would be a long rest when he fell asleep. He needed it. The round of chemotherapy Benji finished yesterday… Continue Reading Day 686/58

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, blood transfusion, CMMRD, cyclophosphamide, etoposide, hemoglobin, Neupogen, platelets, relapse6 Comments

Day 685/57

Laura Gilkey on November 16, 2016November 16, 2016

The last day of Benjamin’s intermediate level chemotherapy has come and gone. Now, we wait. This morning’s lab report showed a continued trend in the right direction. Benji’s white blood… Continue Reading Day 685/57

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, cyclophosphamide, etoposide, platelets, relapse7 Comments

Day 684/56

Laura Gilkey on November 16, 2016

Benji slept through the night and didn’t need any more morphine or hot baths. I had a great feeling about today. I jumped up at shift change, excited to see… Continue Reading Day 684/56

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, CHOP, platelets, port, relapse, school7 Comments

Day 683/55

Laura Gilkey on November 14, 2016November 15, 2016

When Benjamin is in pain, everything seems so much harder. His spleen continued to agonize him throughout the night. It woke him up and made his eyes wide with fear.… Continue Reading Day 683/55

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cyclophosphamide, etoposide, nausea, pain, platelets, relapse, spleen, transfusion, ultrasound10 Comments

Day 682/54

Laura Gilkey on November 13, 2016November 14, 2016

Benji and I didn’t get much sleep last night. He had a platelet transfusion after midnight. Toward the end of it, he said he was feeling like he was getting… Continue Reading Day 682/54

Categories: Uncategorized Tags: acute lymphoblastic leukemia, community, family, pain, platelets, relapse, spleen, transfusion4 Comments

Day 681/53

Laura Gilkey on November 12, 2016November 13, 2016

Benjamin had a great day today. So did Banyan. I’m grateful for two happy children, and for the first step on a new path. I woke up to the sounds… Continue Reading Day 681/53

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, cyclophosphamide, etoposide, family, relapse4 Comments

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