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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 419

Laura Gilkey on February 25, 2016

I am thinking a lot tonight about energy, and the way it circles around all of us, all the time. It is palpable and transferable. We give it and we… Continue Reading Day 419

Categories: Uncategorized Tags: acute lymphoblastic leukemia, rainbow stars, siblingsLeave a comment

Day 418

Laura Gilkey on February 23, 2016

I began my day under a full moon on the Ringling Bridge. I was alone, and it was extremely quiet. The usual volume of walkers and joggers and bikers was… Continue Reading Day 418

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, prednisone, school, siblings, steroidsLeave a comment

Day 417

Laura Gilkey on February 22, 2016

I had two dreams last night that I can remember. In one, I was holding Benjamin, who was about a year and a half old. He was naked and we… Continue Reading Day 417

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dreams, school, siblings, steroids, sulforaphane glucosinolate2 Comments

Day 416

Laura Gilkey on February 21, 2016

Benjamin’s February steroid pulse has come to an end. Hallelujah. Every night this week, the medicine has reared its ugly head during the interminable, tear-filled wait between “please be seated” and… Continue Reading Day 416

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, mania, nutrition, siblings, steroidsLeave a comment

Day 415

Laura Gilkey on February 20, 2016February 20, 2016

It was an absolutely gorgeous Saturday morning for youth athletics. Benjamin’s baseball season officially gets underway next Saturday, but the team had a scrimmage today. Michael and I divided and… Continue Reading Day 415

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, alternative therapy, antibiotic, complementary therapy, language, mercaptopurine, prednisone, qi gong, septra, words1 Comment

Day 414

Laura Gilkey on February 19, 2016

I was awake much later than I intended last night. I created a facebook page for the Rainbow Star project. Within minutes, I had four requests for stars.    … Continue Reading Day 414

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, leucovorin, prednisone, rainbow stars, school, siblings, steroidsLeave a comment

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