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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 431

Laura Gilkey on March 7, 2016

Benjamin stayed home from school today. He woke up super congested and coughing up a storm. He has been stuffy the last couple of mornings, but his congestion usually dissipates once he’s… Continue Reading Day 431

Categories: Uncategorized Tags: acute lymphoblastic leukemia, homeschool, hunger, nutrition, school, steroids1 Comment

Day 430

Laura Gilkey on March 6, 2016March 6, 2016

What an awesome day. Baseball runs deep in my family, and spring training in southwest Florida goes back several generations. Today we were excited to catch our first spring training… Continue Reading Day 430

Categories: Uncategorized Tags: acute lymhoblastic leukemia4 Comments

Day 429

Laura Gilkey on March 5, 2016

It was a full, rich, gorgeous day. Morning baseball game. End of season flag football party. Afternoon boat ride to the beach. Lovely dinner with family. Everyone is happy and… Continue Reading Day 429

Categories: Uncategorized Tags: acute lymphoblastic leukemia1 Comment

Day 428

Laura Gilkey on March 4, 2016March 5, 2016

Michael and I are on our way home from our fourth Willie Nelson concert together. Our first was on our honeymoon almost fourteen years ago. For the last 48 hours… Continue Reading Day 428

Categories: Uncategorized Tags: acute lymphoblastic leukemia, marriageLeave a comment

Day 427

Laura Gilkey on March 3, 2016

It was a gorgeous, cool purple morning as my friend and I watched the sun rise over the Ringling Bridge. Always such a beautiful way to start the day. I told… Continue Reading Day 427

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation, mercaptopurine, MRD, rainbow stars, school, siblingsLeave a comment

Day 426

Laura Gilkey on March 2, 2016

I’ve just returned from the third monthly tea with other mothers of children with cancer in Sarasota. I find myself already looking forward to the next time I am in… Continue Reading Day 426

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear1 Comment

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