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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 473

Laura Gilkey on April 18, 2016April 18, 2016

Benji’s sore throat returned this morning, but only for a few minutes. He felt better as the morning went on, and by drop-off time he was right as rain. The… Continue Reading Day 473

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, exercise, hair, school, steroids1 Comment

Day 472

Laura Gilkey on April 17, 2016

Benjamin hasn’t complained of a sore throat all day. I feel pretty safe in saying we’ve dodged another virus. His steroid pulse also ended this morning. Hallelujah. I realized this morning that… Continue Reading Day 472

Categories: Uncategorized Tags: acute lymphoblastic leukemia, prednisone, steroidsLeave a comment

Day 471

Laura Gilkey on April 16, 2016

Benji woke up with a sore throat. Day five of his steroid pulse and he hardly cared to eat breakfast. That’s unheard of. I thought this might preclude him from… Continue Reading Day 471

Categories: Uncategorized Tags: acute lymphoblastic leukemia, siblings, sports, steroids, virusLeave a comment

Day 470

Laura Gilkey on April 15, 2016

I was up super late last night. I had to administer Leucovorin to Benji at 1:20am, 60 hours after his lumbar puncture. Once the hour passed midnight, I made the decision to… Continue Reading Day 470

Categories: Uncategorized Tags: acute lymphoblastic leukemia, leucovorin, prednisone, siblings, steroidsLeave a comment

Day 469

Laura Gilkey on April 14, 2016

The newly increased dosage of steroids are in FULL effect, and Benji’s only taken five doses. I walked into the boys’ room this morning to wake them up after a… Continue Reading Day 469

Categories: Uncategorized Tags: acute lymphoblastic leukemia, gratitude, leucovorin, school, siblingsLeave a comment

Day 468

Laura Gilkey on April 13, 2016

For the first time since long term maintenance began, Benjamin went to school on the day following a lumbar puncture. I had a feeling he would. He woke up easily and calmly… Continue Reading Day 468

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dosage increase, lumbar puncture, maintenance, propofol, school, siblings, steroidsLeave a comment

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