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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 479

Laura Gilkey on April 24, 2016April 25, 2016

Sunday. Fun day. We are so incredibly fortunate. As we ended our action packed weekend tonight, we learned that a dear friend passed away. The shock is still palpable. We… Continue Reading Day 479

Categories: Uncategorized Tags: acute lymphoblastic leukemiaLeave a comment

Day 478

Laura Gilkey on April 23, 2016April 23, 2016

We are pleasantly whooped. The day began with pancakes and bacon for five sleepy boys, then it was off to sports central: football for Banyan in the morning, baseball for… Continue Reading Day 478

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, petichiae, siblings, sportsLeave a comment

Day 477

Laura Gilkey on April 22, 2016

After I picked Benji up from school today, I took a call from One Blood, the blood donation service that supplies All Children’s Hospital with blood and platelets. They are… Continue Reading Day 477

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood, blood transfusion, siblings2 Comments

Day 476

Laura Gilkey on April 21, 2016April 21, 2016

Benji felt totally fine today. Just once, as we were getting into the car to go to school, he said, “My tummy will feel better as the day goes on,… Continue Reading Day 476

Categories: Uncategorized Tags: acute lymphoblastic leukemia, nausea, school, siblings, sportsLeave a comment

Day 475

Laura Gilkey on April 20, 2016April 21, 2016

I checked in with my online moms’ group to further assuage my guilt for giving Benji his Methotrexate with his 6MP last night. Turns out almost everyone does it that… Continue Reading Day 475

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, baseball, kytril, maintenance, methotrexate, nausea, school, zofran4 Comments

Day 474

Laura Gilkey on April 19, 2016

The Ringling Bridge at sunrise is one of my favorite places in the world to be. I would need the pause this morning, the stillness, the quiet contemplation with my… Continue Reading Day 474

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, methotrexate, school, sports1 Comment

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