Last night was a rough one. Benjamin woke up several times during our short sleep, unable to find comfort. His spleen hurt worse than it has in weeks. At first… Continue Reading Day 707/79
Day 707/79
on on Day 706/78
on Benjamin has received his first dose of Inotuzumab. Its administration went smoothly, and he tolerated it well. We both slept as long as we could this morning. We tried to… Continue Reading Day 706/78
Day 705/77
on I am ending another long day with gratitude. There have been moments of exhaustion and moments of fear, but overwhelmingly, the things that could go well, did go well. On… Continue Reading Day 705/77
Day 704/76
on All of today’s procedures went very smoothly. Benjamin is safe and sound, resting comfortably in his bed on the seventh floor. Benjamin’s scheduled 4am transfusion bumped his platelets from 3,000… Continue Reading Day 704/76
Day 703/75
on “The waiting is the hardest part” is a phrase I’ve used in this space before, a phrase parents on the 7th floor utter frequently. It’s true, there is fear in… Continue Reading Day 703/75
Day 702/74
on Benjamin had another great day today. We deeply missed the other half of our foursome, but we enjoyed our hospital family, and soaked up a bit of Saturday sunshine in… Continue Reading Day 702/74