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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 41

Laura Gilkey on February 11, 2015February 11, 2015

Day 3 of Consolidation. Benjamin woke up and immediately said he felt like he had to throw up. I knew to expect this, and thought it was the Cytarabine catching… Continue Reading Day 41

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, consolidation, cytarabine, zofran6 Comments

Day 40

Laura Gilkey on February 10, 2015February 10, 2015

Day 40 of treatment, Day 2 of Consolidation. Another trip over the bridge, another new medicine. One day closer. Benjamin’s chemotherapy cocktail today consisted of a second day of intravenous… Continue Reading Day 40

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, cyclophosphamide, cytarabine2 Comments

Day 39

Laura Gilkey on February 9, 2015

Day 1 of Consolidation. We were at All Children’s much longer than we expected, but Benjamin’s first day in this new strengthening phase went extremely well. The effects of the… Continue Reading Day 39

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, ara C, cytarabine, dexamethasone, mercaptopurine, methotrexate4 Comments

Day 38

Laura Gilkey on February 8, 2015February 8, 2015

Another gorgeous day to end this almost perfect weekend. I woke up this morning and made a nice big Sunday breakfast, then sat down to two hours of research while Michael kept… Continue Reading Day 38

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation, nutrition8 Comments

Day 37

Laura Gilkey on February 7, 2015

Today was almost perfect. Today, aside from morning and evening antibiotics and a few minor mood swings, there was no mention of leukemia. Leukemia took a silent backseat to much… Continue Reading Day 37

Categories: Uncategorized Tags: acute lymphoblastic leukemia6 Comments

Day 36

Laura Gilkey on February 6, 2015February 6, 2015

I woke up this morning at 5:29am, one minute before my alarm went off. I had an important date with one bridge before heading over another. When I got back into… Continue Reading Day 36

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, consolidation, cyclophosphamide, cytarabine, dexamethasone, MRD, pegaspargase, vincristine12 Comments

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