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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 731/103

Laura Gilkey on January 1, 2017May 13, 2017

Benjamin began this New Year with a strong and happy day. He got plenty of sleep last night. He only complained of tummy pain a couple of times, and mildly.… Continue Reading Day 731/103

Categories: Uncategorized Tags: acute lymphoblastic leukemia, appetite, c. diff, family, friends, relapse, transfusion9 Comments

Day 730/102

Laura Gilkey on December 31, 2016May 13, 2017

We’re watching fireworks over the Skyway from the seventh floor, just like we did on New Year’s Eve two years ago, after our world was turned upside down by Benjamin’s… Continue Reading Day 730/102

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, appetite, family, hospital, platelets, relapse10 Comments

Day 729/101

Laura Gilkey on December 30, 2016May 13, 2017

We are still waiting for the final word from CHOP. I checked my email about a hundred thousand times today. Now that the work week has passed, we are prepared… Continue Reading Day 729/101

Categories: Uncategorized Tags: acute lymphoblastic leukemia, home, platelets, relapse, transfusion10 Comments

Day 728/100

Laura Gilkey on December 29, 2016December 30, 2016

We received the results of Benjamin’s bone marrow aspirate today. We don’t have the complete analysis, and a clear path has not yet been laid in front of us. But… Continue Reading Day 728/100

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, inotuzumab, neutropenia, platelets, relapse, stomach pain14 Comments

Day 727/99

Laura Gilkey on December 28, 2016

We are still waiting for the results of Benjamin’s bone marrow aspirate, and that’s just fine with me. Despite my best efforts, any time there was a knock at our… Continue Reading Day 727/99

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, bone marrow aspirate, nausea, platelets, relapse15 Comments

Day 726/98

Laura Gilkey on December 27, 2016

We are in the waiting space.  We have been here five times before. I wish I weren’t used to this but I am, and the blessing therein is perspective. The… Continue Reading Day 726/98

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow aspirate, inotuzumab, nausea, relapse14 Comments

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