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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 203

Laura Gilkey on July 23, 2015July 23, 2015

This steroid pulse week is bringing up so many emotions. After much frustration I’ve decided to use this as an opportunity for learning. Benjamin will have a steroid pulse every… Continue Reading Day 203

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, exhaustion, hair loss, hunger, steroidsLeave a comment

Day 202

Laura Gilkey on July 22, 2015July 23, 2015

Benjamin experienced many feelings today, but one was constant: hunger. This Dexamethasone pulse is in full swing. He’s barely finished with one meal before asking for the next. This morning… Continue Reading Day 202

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, ErwiniaLeave a comment

Day 201

Laura Gilkey on July 21, 2015July 21, 2015

Benji woke up early with a tender, hungry tummy. He had Kytril, morning Dexamethasone, first breakfast and second breakfast, and then requested a rare morning nap. I happily obliged and… Continue Reading Day 201

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, Erwinia, kytril2 Comments

Day 200

Laura Gilkey on July 21, 2015July 27, 2015

Benjamin slept extremely well in his new bed. He was the last to rise in the house. We made breakfast, packed lunch, and headed to All Children’s. His attitude was… Continue Reading Day 200

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, delayed intensification, doxorubicin, Erwinia, kytril, thioguanine, vincristine5 Comments

Day 199

Laura Gilkey on July 19, 2015

From the time we woke up until _____ (we’re still going), we worked on Project Kids’ Room Renovation 2015. It has been such a productive day, and for the first… Continue Reading Day 199

Categories: Uncategorized Tags: acute lymphoblastic leukemia, delayed intensification, dexamethasone, doxorubicin, Erwinia, vincristineLeave a comment

Day 198

Laura Gilkey on July 18, 2015

Another good night’s sleep for all preceded a trip to our Downtown Farmer’s Market. We haven’t been in ages. Benjamin loved it. We scored a bunch of veggies and even… Continue Reading Day 198

Categories: Uncategorized Tags: acute lymhoblastic leukemiaLeave a comment

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