Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Author: Laura Gilkey

Day 473

Laura Gilkey on April 18, 2016April 18, 2016

Benji’s sore throat returned this morning, but only for a few minutes. He felt better as the morning went on, and by drop-off time he was right as rain. The… Continue Reading Day 473

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, exercise, hair, school, steroids1 Comment

Day 472

Laura Gilkey on April 17, 2016

Benjamin hasn’t complained of a sore throat all day. I feel pretty safe in saying we’ve dodged another virus. His steroid pulse also ended this morning. Hallelujah. I realized this morning that… Continue Reading Day 472

Categories: Uncategorized Tags: acute lymphoblastic leukemia, prednisone, steroidsLeave a comment

Day 471

Laura Gilkey on April 16, 2016

Benji woke up with a sore throat. Day five of his steroid pulse and he hardly cared to eat breakfast. That’s unheard of. I thought this might preclude him from… Continue Reading Day 471

Categories: Uncategorized Tags: acute lymphoblastic leukemia, siblings, sports, steroids, virusLeave a comment

Day 470

Laura Gilkey on April 15, 2016

I was up super late last night. I had to administer Leucovorin to Benji at 1:20am, 60 hours after his lumbar puncture. Once the hour passed midnight, I made the decision to… Continue Reading Day 470

Categories: Uncategorized Tags: acute lymphoblastic leukemia, leucovorin, prednisone, siblings, steroidsLeave a comment

Day 469

Laura Gilkey on April 14, 2016

The newly increased dosage of steroids are in FULL effect, and Benji’s only taken five doses. I walked into the boys’ room this morning to wake them up after a… Continue Reading Day 469

Categories: Uncategorized Tags: acute lymphoblastic leukemia, gratitude, leucovorin, school, siblingsLeave a comment

Day 468

Laura Gilkey on April 13, 2016

For the first time since long term maintenance began, Benjamin went to school on the day following a lumbar puncture. I had a feeling he would. He woke up easily and calmly… Continue Reading Day 468

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dosage increase, lumbar puncture, maintenance, propofol, school, siblings, steroidsLeave a comment

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content