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Tag: support

Day 764/136

Laura Gilkey on February 3, 2017May 10, 2017

Benjamin slept deeply and peacefully last night and I followed, breathing with him. I woke up at shift change, grateful to see one of my favorite nurses coming on board… Continue Reading Day 764/136

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death, family, pain, relapse, support106 Comments

Day 383

Laura Gilkey on January 19, 2016January 19, 2016

It has been a long day, but here, at its end, gratitude is finding me easily. Benjamin went to sleep last night complaining of throat pain. At 3am, he woke… Continue Reading Day 383

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, family, intrathecal methotrexate, lumbar puncture, prednisone, siblings, steroids, supportLeave a comment

Day 349

Laura Gilkey on December 16, 2015December 16, 2015

I was wrong about the Tuesday tummy ache. It returned this morning too. They are gone almost as soon as they appear; still, I don’t like them. Benji’s tummy aches… Continue Reading Day 349

Categories: Uncategorized Tags: acute lymphoblastic leukemia, support3 Comments

Day 65

Laura Gilkey on March 7, 2015

It was a nice, soft, slow, sweet Saturday. Benjamin woke up feeling great. He felt some leg pain last night, which sounded like aftermath of his Erwinia shots; by this… Continue Reading Day 65

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, support3 Comments

Day 19

Laura Gilkey on January 20, 2015January 20, 2015

Today was a lot easier than yesterday. Benjamin was still quite hungry; he woke up at 7, and by 8, he’d eaten a sushi roll, an English muffin pizza, two… Continue Reading Day 19

Categories: Uncategorized Tags: acute lymphoblastic leukemia, homeschool, siblings, support1 Comment

Day 14

Laura Gilkey on January 15, 2015January 18, 2015

Today was…hard. Benjamin didn’t feel well most of the day. I know this is to be expected, but man, is it difficult to watch. He was tired, achy, and never… Continue Reading Day 14

Categories: Uncategorized Tags: chemotherapy, dexamethasone, siblings, support, vincristineLeave a comment

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