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Tag: relapse

Day 692/64

Laura Gilkey on November 23, 2016

Benjamin woke up early this morning with a high fever and tummy pain. He vomited during shift change a few minutes later. It was a strange, dark, pungent liquid. There… Continue Reading Day 692/64

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Blinatumomab, CAR-T, clinical trial, nausea, platelets, relapse, spleen8 Comments

Day 691/63

Laura Gilkey on November 22, 2016November 23, 2016

Benjamin’s fever rose and fell throughout the night, and into the day. At morning lab draw, our nurse took a blood culture. Nothing has come back positive for bacterial growth.… Continue Reading Day 691/63

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, cyclophosphamide, etoposide, family, fever, platelets, relapse, siblings10 Comments

Day 690/62

Laura Gilkey on November 21, 2016November 22, 2016

Benji asked for pain medication last night. His side started hurting too badly to sleep. So for the first time in a week, he took a low dose of oral… Continue Reading Day 690/62

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, neutropenia, platelets, port, relapse, transfusion5 Comments

Day 689/61

Laura Gilkey on November 20, 2016

The sunrise was spectacular. Benji and I were awake, calmly lying in bed as our night nurse prepared to draw labs at 6am. I sleepily asked if she was going… Continue Reading Day 689/61

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, Neupogen, platelets, relapse, spleen, transfusion9 Comments

Day 688/60

Laura Gilkey on November 19, 2016

Benjamin didn’t sleep very well last night. His side was hurting intensely after yesterday’s platelet transfusion. I woke up before he did, when our day shift nurse came in to… Continue Reading Day 688/60

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, cyclophosphamide, etoposide, grandparents, platelets, relapse, siblings, spleen, transfusion7 Comments

Day 687/59

Laura Gilkey on November 18, 2016November 19, 2016

It was a very busy day up here on 7 South. I was pouring my first cup of coffee when the phone rang. It was the nurse navigator for the… Continue Reading Day 687/59

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, antibiotics, Blinatumomab, CAR-T, lymphocytes, platelets, relapse, transfusion, x-ray8 Comments

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