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Tag: platelets

Day 708/80

Laura Gilkey on December 9, 2016

There were a lot of positive things about today that I’d like to focus on. Right now I’m finding it difficult. I’m grateful for this space in which to sort… Continue Reading Day 708/80

Categories: Uncategorized Tags: acute lymphoblastic leukemia, christmas, inotuzumab, marinol, morphine, platelets, spleen8 Comments

Day 706/78

Laura Gilkey on December 7, 2016December 8, 2016

Benjamin has received his first dose of Inotuzumab. Its administration went smoothly, and he tolerated it well. We both slept as long as we could this morning. We tried to… Continue Reading Day 706/78

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, inotuzumab, platelets, relapse, transfusion15 Comments

Day 705/77

Laura Gilkey on December 6, 2016December 7, 2016

I am ending another long day with gratitude. There have been moments of exhaustion and moments of fear, but overwhelmingly, the things that could go well, did go well. On… Continue Reading Day 705/77

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, inotuzumab, platelets, relapse, surgery, transfusion13 Comments

Day 704/76

Laura Gilkey on December 5, 2016

All of today’s procedures went very smoothly. Benjamin is safe and sound, resting comfortably in his bed on the seventh floor. Benjamin’s scheduled 4am transfusion bumped his platelets from 3,000… Continue Reading Day 704/76

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, beads of courage, blood transfusion, immunotherapy, inotuzumab, nausea, platelets, relapse16 Comments

Day 703/75

Laura Gilkey on December 4, 2016December 5, 2016

“The waiting is the hardest part” is a phrase I’ve used in this space before, a phrase parents on the 7th floor utter frequently. It’s true, there is fear in… Continue Reading Day 703/75

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, blood transfusion, inotuzumab, platelets, relapse, siblings17 Comments

Day 702/74

Laura Gilkey on December 3, 2016December 4, 2016

Benjamin had another great day today. We deeply missed the other half of our foursome, but we enjoyed our hospital family, and soaked up a bit of Saturday sunshine in… Continue Reading Day 702/74

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, inotuzumab, platelets, relapse, siblings, transfusion8 Comments

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