We are still waiting for the final word from CHOP. I checked my email about a hundred thousand times today. Now that the work week has passed, we are prepared… Continue Reading Day 729/101
Day 729/101
on Tag: platelets
on Day 728/100
on We received the results of Benjamin’s bone marrow aspirate today. We don’t have the complete analysis, and a clear path has not yet been laid in front of us. But… Continue Reading Day 728/100
Day 727/99
on We are still waiting for the results of Benjamin’s bone marrow aspirate, and that’s just fine with me. Despite my best efforts, any time there was a knock at our… Continue Reading Day 727/99
Day 721/93
on Today was Benjamin Wilson Gilkey’s 9th birthday. There have been so many emotions flowing through this room today. I’m exhausted and I’m grateful. Next to me is a boy who… Continue Reading Day 721/93
Day 719/91
on Benji and I were up before shift change again. He was in great discomfort. He begged our night nurse not to draw morning labs–a daily procedure that has never bothered… Continue Reading Day 719/91
Day 716/88
on I didn’t want to look at this morning’s numbers. I tried so hard last night to focus on Benji’s slow and steadily declining leukemia blasts, but this morning I was… Continue Reading Day 716/88