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Tag: mucositis

Day 340

Laura Gilkey on December 7, 2015

Michael woke up before dawn to go to his Monday morning breakfast meeting. None of the rest of us seemed to want to get out of bed. I pushed it… Continue Reading Day 340

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, healios, methotrexate, mucositis, toxicityLeave a comment

Day 337

Laura Gilkey on December 5, 2015December 5, 2015

It’s Friday. Fridays used to be clinic days. Now Fridays are bagel days. We started the day at our favorite bagel joint and things just fell into place afterwards. Life… Continue Reading Day 337

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, methotrexate, mucositis, oral chemotherapyLeave a comment

Day 288

Laura Gilkey on October 16, 2015

Benji took several more steps in the right direction today. His spirits were down when he woke; his lips were hurting, but mostly I think he was processing the idea… Continue Reading Day 288

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, mucosal desquamation, mucositis, siblings, total parenteral nutrition4 Comments

Day 287

Laura Gilkey on October 15, 2015

According to our night nurse, Benji “slept through the night.” That’s not quite accurate, but we definitely got more sleep than we have in many days. It was like a… Continue Reading Day 287

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, creatinine, hemoglobin, mucositis, nausea, platelets6 Comments

Day 286

Laura Gilkey on October 14, 2015October 14, 2015

Benji’s lips hurt again last night, and he just couldn’t leave them alone. We didn’t get much sleep up here on the seventh floor. Sarah spent the night with us… Continue Reading Day 286

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cousins, creatinine, kidneys, mucositis, nausea, siblings4 Comments

Day 285

Laura Gilkey on October 14, 2015

Benjamin is no longer in isolation. He has been fever free for well over 24 hours, and his latest swab came back negative for rhinovirus–he doesn’t even have a common… Continue Reading Day 285

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, creatinine, kidneys, mucositis, Neupogen7 Comments

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