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Tag: inotuzumab

Day 710/82

Laura Gilkey on December 11, 2016December 12, 2016

It appears as though yesterday’s platelet count was a fluke. Today, the number was back down to 2,000. All day yesterday I tried to shush the voice in my head… Continue Reading Day 710/82

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, marinol, morphine, nausea, spleen11 Comments

Day 709/81

Laura Gilkey on December 10, 2016December 11, 2016

Benji needed more morphine and heat packs throughout the night to stay comfortable, but these tools worked, and he slept well. He woke up in pain and wanted a hot… Continue Reading Day 709/81

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, morphine, nausea, platelets, relapse, spleen15 Comments

Day 708/80

Laura Gilkey on December 9, 2016

There were a lot of positive things about today that I’d like to focus on. Right now I’m finding it difficult. I’m grateful for this space in which to sort… Continue Reading Day 708/80

Categories: Uncategorized Tags: acute lymphoblastic leukemia, christmas, inotuzumab, marinol, morphine, platelets, spleen8 Comments

Day 707/79

Laura Gilkey on December 8, 2016December 9, 2016

Last night was a rough one. Benjamin woke up several times during our short sleep, unable to find comfort. His spleen hurt worse than it has in weeks. At first… Continue Reading Day 707/79

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, kytril, marinol, morphine, nausea, relapse, stomach pain9 Comments

Day 706/78

Laura Gilkey on December 7, 2016December 8, 2016

Benjamin has received his first dose of Inotuzumab. Its administration went smoothly, and he tolerated it well. We both slept as long as we could this morning. We tried to… Continue Reading Day 706/78

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CMMRD, inotuzumab, platelets, relapse, transfusion15 Comments

Day 705/77

Laura Gilkey on December 6, 2016December 7, 2016

I am ending another long day with gratitude. There have been moments of exhaustion and moments of fear, but overwhelmingly, the things that could go well, did go well. On… Continue Reading Day 705/77

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, inotuzumab, platelets, relapse, surgery, transfusion13 Comments

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