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Tag: inotuzumab

Day 743/115

Laura Gilkey on January 13, 2017May 17, 2017

Our path looks much more clear today. The National Institutes of Health considers Benjamin a viable candidate for their CAR-T clinical trial targeting the CD22 protein. It’s such a relief to… Continue Reading Day 743/115

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, inotuzumab, intrathecal chemotherapy, lumbar puncture, nausea, relapse, stomach pain10 Comments

Day 742/114

Laura Gilkey on January 12, 2017May 17, 2017

Our intention was unmistakable. A clear path toward Benjamin’s perfect healing. Today we heard the words “no clear path,” and “imperfect options.” I realized today that we aren’t waiting for a path to appear… Continue Reading Day 742/114

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, CAR-T, inotuzumab, nausea, platelets, relapse, spleen11 Comments

Day 740/112

Laura Gilkey on January 10, 2017May 13, 2017

High highs and low lows today. Sunrises and sunsets. The comforts of home and the realities of leukemia. For the first time in far too long, my day began on… Continue Reading Day 740/112

Categories: Uncategorized Tags: acute lymphoblastic leukemia, home, inotuzumab, morphine, pain, platelets, relapse, spleen9 Comments

Day 739/111

Laura Gilkey on January 9, 2017May 13, 2017

Benji is sleeping next to me. He is pleasantly exhausted from a long, busy day that went very well. Benji was a little nervous this morning and his tummy hurt.… Continue Reading Day 739/111

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, clinic, clinical trial, home, inotuzumab, nutrition, relapse, stomach pain11 Comments

Day 735/107

Laura Gilkey on January 5, 2017May 13, 2017

We are home. Everything feels pretty overwhelming right now. So many emotions today and so much uncertainty ahead. Home is the word and the feeling and the place I am… Continue Reading Day 735/107

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blinotumomab, CAR-T, home, inotuzumab, platelets, relapse, siblings, spleen11 Comments

Day 728/100

Laura Gilkey on December 29, 2016December 30, 2016

We received the results of Benjamin’s bone marrow aspirate today. We don’t have the complete analysis, and a clear path has not yet been laid in front of us. But… Continue Reading Day 728/100

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, inotuzumab, neutropenia, platelets, relapse, stomach pain14 Comments

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