Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: dexamethasone

Day 203

Laura Gilkey on July 23, 2015July 23, 2015

This steroid pulse week is bringing up so many emotions. After much frustration I’ve decided to use this as an opportunity for learning. Benjamin will have a steroid pulse every… Continue Reading Day 203

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, exhaustion, hair loss, hunger, steroidsLeave a comment

Day 202

Laura Gilkey on July 22, 2015July 23, 2015

Benjamin experienced many feelings today, but one was constant: hunger. This Dexamethasone pulse is in full swing. He’s barely finished with one meal before asking for the next. This morning… Continue Reading Day 202

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, ErwiniaLeave a comment

Day 201

Laura Gilkey on July 21, 2015July 21, 2015

Benji woke up early with a tender, hungry tummy. He had Kytril, morning Dexamethasone, first breakfast and second breakfast, and then requested a rare morning nap. I happily obliged and… Continue Reading Day 201

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, Erwinia, kytril2 Comments

Day 199

Laura Gilkey on July 19, 2015

From the time we woke up until _____ (we’re still going), we worked on Project Kids’ Room Renovation 2015. It has been such a productive day, and for the first… Continue Reading Day 199

Categories: Uncategorized Tags: acute lymphoblastic leukemia, delayed intensification, dexamethasone, doxorubicin, Erwinia, vincristineLeave a comment

Day 194

Laura Gilkey on July 14, 2015

Benjamin felt much better as the day went on today. He woke up feeling sore and his tummy was tender, so I fed him breakfast and Kytril and we promptly… Continue Reading Day 194

Categories: Uncategorized Tags: absolute neutrophil count, acute lymphoblastic leukemia, delayed intensification, dexamethasone, Erwinia, kytril2 Comments

Day 189

Laura Gilkey on July 9, 2015July 10, 2015

Emotions are just a tad bit heightened around here as this week rolls on. Banyan is one day closer to leaving for camp. Benjamin is one day closer to making… Continue Reading Day 189

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, Erwinia, kytril1 Comment

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content