The boys had the day off from school today. Banyan slept in, while Benjamin woke up before the sun to join his daddy at his Monday breakfast meeting. He loves… Continue Reading Day 410
Day 410
on Tag: dexamethasone
on Day 208
on Benjamin slept soundly all night. He didn’t wake from hunger or night sweats or bad dreams. I, on the other hand, couldn’t sleep. When I returned from my sunrise bridge walk,… Continue Reading Day 208
Day 207
on At 12:45am, I made toast with butter and honey for Benjamin, who woke up crying of hunger. At 6:45am, I made him tuna and egg salad sandwiches with mango on… Continue Reading Day 207
Day 206
on Benjamin has taken his last dose of Dexamethasone until long term maintenance. We won’t see the steroid again any sooner than November, and I will not be missing it. I… Continue Reading Day 206
Day 205
on I woke up early this morning, feeling fantastic. I felt like a page had turned for me. I felt motivated in a way I haven’t felt in quite some time,… Continue Reading Day 205
Day 204
on It rained nearly all day here in Sarasota. Benjamin woke up in good spirits, but with demanding hunger. I am thankful that he enjoys working in the kitchen. He had… Continue Reading Day 204