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Tag: c. diff

Day 734/106

Laura Gilkey on January 4, 2017May 13, 2017

We are still waiting for some critical information, but we also have some answers. A path is forming and it includes time at home. The biggest blessing that has come… Continue Reading Day 734/106

Categories: Uncategorized Tags: acute lymphoblastic leukemia, c. diff, CAR-T, clinical trial, hospital, nurses, platelets, relapse13 Comments

Day 731/103

Laura Gilkey on January 1, 2017May 13, 2017

Benjamin began this New Year with a strong and happy day. He got plenty of sleep last night. He only complained of tummy pain a couple of times, and mildly.… Continue Reading Day 731/103

Categories: Uncategorized Tags: acute lymphoblastic leukemia, appetite, c. diff, family, friends, relapse, transfusion9 Comments

Day 720/92

Laura Gilkey on December 21, 2016December 21, 2016

Benji has received his last dose of Inotuzumab, at least for this cycle. The next step is a huge step, and I’m trying to stay present as it approaches. For… Continue Reading Day 720/92

Categories: Uncategorized Tags: acute lymphoblastic leukemia, birthday, c. diff, food, inotuzumab, nausea, relapse9 Comments

Day 719/91

Laura Gilkey on December 20, 2016December 21, 2016

Benji and I were up before shift change again. He was in great discomfort. He begged our night nurse not to draw morning labs–a daily procedure that has never bothered… Continue Reading Day 719/91

Categories: Uncategorized Tags: acute lymphoblastic leukemia, ativan, c. diff, inotuzumab, marinol, nausea, platelets, relapse, transfusion15 Comments

Day 718/90

Laura Gilkey on December 19, 2016December 22, 2016

Benjamin and I slept well last night and were both awake at shift change. His numbers are holding steady. Saturday’s increase may have been sample bias, I don’t know; but… Continue Reading Day 718/90

Categories: Uncategorized Tags: acute lymphoblastic leukemia, c. diff, diarrhea, inotuzumab, marinol, nausea, relapse11 Comments

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