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Category: Uncategorized

Day 674/46

Laura Gilkey on November 5, 2016November 6, 2016

Today was lovely. Benjamin felt great and was wildly energetic as soon as he woke up. Out of isolation, he was off to the races to play with the nurses… Continue Reading Day 674/46

Categories: Uncategorized Tags: acute lymphoblastic leukemia, grandparents, lasix, relapse2 Comments

Day 673/45

Laura Gilkey on November 4, 2016November 5, 2016

Benji slept soundly. When he woke up, he complained pretty seriously of stomach pain. He stood up to go to the bathroom and blood filled the tubing coming from his port.… Continue Reading Day 673/45

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, relapse, siblings1 Comment

Day 672/44

Laura Gilkey on November 3, 2016November 4, 2016

Benji and I woke up at shift change, but he went back to sleep almost immediately. I stayed up for the gorgeous sunrise. When he woke for the day a… Continue Reading Day 672/44

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, fever, immunotherapy, relapse3 Comments

Day 671/43

Laura Gilkey on November 2, 2016November 3, 2016

Benji’s Blinatumomab began its slow drip at 5:12 this morning. Twenty hours in, and so far, so good. It seems like such a mundane phrase for such a big day.… Continue Reading Day 671/43

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow transplant, Cytokines, dexamethasone, fever, immunotherapy, radiation, relapse, steroids4 Comments

Day 670/42

Laura Gilkey on November 1, 2016November 2, 2016

We’re all moved in up here on the 7th floor. I hope to get some sleep tonight, but my heart is beating too quickly for that to happen just yet. Benji’s… Continue Reading Day 670/42

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, immunotherapy, relapse9 Comments

Day 669/41

Laura Gilkey on October 31, 2016October 31, 2016

Michael woke us all up this morning to watch the sun rise over the Atlantic Ocean. I’m so thankful he did. I have tried for 669 days to put into… Continue Reading Day 669/41

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, family, friends, immunotherapy, relapse3 Comments

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