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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 239

Laura Gilkey on August 28, 2015August 29, 2015

I woke up thinking of Hudson, the little boy I wrote about yesterday. I thought of his mama, and her decision to fill her son’s days with happy adventures. I went through… Continue Reading Day 239

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia, interim maintenance 23 Comments

Day 238

Laura Gilkey on August 27, 2015

Benji had the sniffles this morning, and a little bit of a cough. Sometimes these symptoms happen after withstanding long stretches of chemo. He could also be fighting back to… Continue Reading Day 238

Categories: Uncategorized Tags: acute lymphoblastic leukemia, delayed intensification, Erwinia, interim maintenance 2, schoolLeave a comment

Day 237

Laura Gilkey on August 26, 2015August 26, 2015

After last night’s baseball game, we were all sleepwalking as we left the house bright and early this morning, Michael and Banyan for work and school, and Benji and me… Continue Reading Day 237

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia, school1 Comment

Day 236

Laura Gilkey on August 25, 2015August 26, 2015

I woke up before the sun and walked the Ringling Bridge. Benji woke up when I came home and took Kytril because his tummy hurt. Then he got dressed in his… Continue Reading Day 236

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, schoolLeave a comment

Day 235

Laura Gilkey on August 24, 2015

There was excitement in the air this morning. Both of our boys were up, dressed, clean, packed and completely ready to go to school before the sun came up. After the… Continue Reading Day 235

Categories: Uncategorized Tags: acute lymphoblastic leukemia, delayed intensification, Erwinia, interim maintenance 2, kytril, long term maintenance, school, siblings, vincristine4 Comments

Day 234

Laura Gilkey on August 23, 2015

Ready or not, the new school year is upon us. Today was spent packing, studying, reading, writing, cooking, and relaxing in preparation for the change we’ll all feel when our… Continue Reading Day 234

Categories: Uncategorized Tags: acute lymphoblastic leukemia, delayed intensification, Erwinia, homeschool, hopecam, interim maintenance 2, school, siblings, vincristine2 Comments

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