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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 65

Laura Gilkey on March 7, 2015

It was a nice, soft, slow, sweet Saturday. Benjamin woke up feeling great. He felt some leg pain last night, which sounded like aftermath of his Erwinia shots; by this… Continue Reading Day 65

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, support3 Comments

Day 64

Laura Gilkey on March 6, 2015March 7, 2015

The nurses in the Infusion Center started dancingĀ as soon as Benjamin walked through the door this morning. There were nurses from another section who’d heard about him and visited our… Continue Reading Day 64

Categories: Uncategorized Tags: acute lymphoblastic leukemia, ANC, consolidation, Erwinia7 Comments

Day 63

Laura Gilkey on March 5, 2015March 5, 2015

Today began with a bridge walk under a full moon and a return home to a freshly waking boy with outstretched arms. After a big hug, Benjamin said he had… Continue Reading Day 63

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation, Erwinia, mucositis, siblings5 Comments

Day 62

Laura Gilkey on March 4, 2015March 5, 2015

We headed over the Sunshine Skyway bright and early this morning. Benji’s favorite team of nurses in the Infusion Center were ready and waiting for him, with more dancing and… Continue Reading Day 62

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, hospital homebound, siblings5 Comments

Day 61

Laura Gilkey on March 3, 2015March 7, 2015

I couldn’t sleep last night. I think it’s because I’ve been reading too much. The Emperor of All Maladies is a fascinating book, and one that makes me extremely grateful… Continue Reading Day 61

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, homeschool9 Comments

Day 60

Laura Gilkey on March 2, 2015March 2, 2015

It was a foggy drive over the Sunshine Skyway this morning. We weren’t sure what to expect today; all we had was an arrival time. We didn’t know the order… Continue Reading Day 60

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation, Erwinia, intrathecal methotrexate, propofol, vincristine7 Comments

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