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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 137

Laura Gilkey on May 18, 2015May 19, 2015

The last time Benjamin was admitted into the hospital, he had a lumbar puncture with intrathecal Methotrexate before the high octane stuff was hung from his IV pole. Today, he… Continue Reading Day 137

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, bone marrow aspirate, high dose methotrexate, homeschooling, vincristine4 Comments

Day 136

Laura Gilkey on May 17, 2015May 17, 2015

The anticipation of tomorrow’s hospital admission was an ever-present force in my mind today. It formed my first conscious thought of the morning (When should I put Benjamin’s Scopolomine patch on?… Continue Reading Day 136

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hospital, siblings4 Comments

Day 135

Laura Gilkey on May 16, 2015

Leukemia was beautifully abeyant today. It crept into the forefront only a few times: during Benjamin’s morning and evening medications, when he sat a little to close to a sneezer… Continue Reading Day 135

Categories: Uncategorized Tags: acute lymphoblastic leukemia, interim maintenance, siblings7 Comments

Day 134

Laura Gilkey on May 15, 2015

I am overwhelmed with gratitude. I didn’t know this feeling could continue to grow, but it does, and it washes over me in huge, swallowing waves. Michael had an early… Continue Reading Day 134

Categories: Uncategorized Tags: acute lymphoblastic leukemia7 Comments

Day 133

Laura Gilkey on May 14, 2015

For only the second time since his diagnosis, Benjamin went to school today. He woke up so nervous. The buttons on his shirt, his hairstyle, which books to pack, the… Continue Reading Day 133

Categories: Uncategorized Tags: acute lymphoblastic leukemia, school, siblings2 Comments

Day 132

Laura Gilkey on May 13, 2015

Aside from his nightly oral chemotherapy, Benjamin did not need any medicines today. No Kytril, no Marinol, and we took the Scopolomine patch off of his neck before lunch. He… Continue Reading Day 132

Categories: Uncategorized Tags: acute lymphoblastic leukemia, homeschool, hospital homebound, school, siblings3 Comments

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