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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 143

Laura Gilkey on May 24, 2015

My sister and her children made a spontaneous day trip down to Sarasota today. We were all excited to spend the afternoon at the beach. I went to the grocery… Continue Reading Day 143

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, neutropenia3 Comments

Day 142

Laura Gilkey on May 23, 2015

I went to bed early and slept in late, so happy to be in my own bed. It was a blissfully normal Saturday. Lunch, birthday party, appliance shopping, neighbor’s pool,… Continue Reading Day 142

Categories: Uncategorized Tags: acute lymphoblastic leukemia, high dose methotrexate, kytril, scopolomine3 Comments

Day 141

Laura Gilkey on May 22, 2015

We are home. Benjamin’s 5am blood draw revealed a methotrexate level of 0.5, well below the mark we needed for clearance. He remained fever free through the night, and his… Continue Reading Day 141

Categories: Uncategorized Tags: acute lymphoblastic leukemia, heparin, methotrexate6 Comments

Day 140

Laura Gilkey on May 21, 2015May 21, 2015

We’ll be spending one more night on the seventh floor. I was up last night at 3am, after our night nurse came in to tell us that Benjamin’s output was… Continue Reading Day 140

Categories: Uncategorized Tags: acute lymphoblastic leukemia, high dose methotrexate, lasix, leucovorin4 Comments

Day 139

Laura Gilkey on May 21, 2015May 21, 2015

We woke up early. The first thing I noticed was that Benjamin’s voice sounded different. The cough came next. Could he be catching a cold? Is it the Vincristine messing… Continue Reading Day 139

Categories: Uncategorized Tags: acute lymphoblastic leukemia, high dose methotrexate, leucovorin8 Comments

Day 138

Laura Gilkey on May 19, 2015May 19, 2015

We both slept in this morning. Benjamin needed the sleep, with all of the medicine he is processing in his body. I did not fall asleep until well into the… Continue Reading Day 138

Categories: Uncategorized Tags: acute lymphoblastic leukemia, high dose methotrexate, interim maintenance, lumbar puncture, nausea3 Comments

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