It was a beautiful Saturday. This morning Michael had a big meeting up in Tampa, and I was flying solo getting the boys ready for sports outings and birthday parties and… Continue Reading Day 506
Day 506
on Tag: steroids
on Day 505
on The effects of last week’s steroid pulse still linger. I brought both boys lunch today, and when I saw Benji’s teacher, she gave me “the look” that said he’d been… Continue Reading Day 505
Day 504
on Racquetball is the perfect sport for a child in his post-steroid week. Benjamin and I played for a solid hour tonight while Banyan was at football practice, and the kid did… Continue Reading Day 504
Day 503
on Today felt a lot more manageable than yesterday did. I spoke with the clinic nurse this morning about Benjamin’s toe, and she asked a lot of thoughtful questions. She feels we… Continue Reading Day 503
Day 502
on When I’m tired, fear is harder to fight. I know this is true tonight. The boys both had great days at school. Benjamin had a field trip to our local… Continue Reading Day 502
Day 500
on Day 500. My God, that sounds like such a huge number. In 500 days, Benji has had: • 1 surgery to place his medi-port • 3 bone marrow aspirates • 18 lumbar… Continue Reading Day 500