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Tag: spleen

Day 735/107

Laura Gilkey on January 5, 2017May 13, 2017

We are home. Everything feels pretty overwhelming right now. So many emotions today and so much uncertainty ahead. Home is the word and the feeling and the place I am… Continue Reading Day 735/107

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blinotumomab, CAR-T, home, inotuzumab, platelets, relapse, siblings, spleen11 Comments

Day 712/84

Laura Gilkey on December 14, 2016December 14, 2016

Benji woke up before the sun in horrible pain. I wondered what was happening; he felt so much better yesterday! He begged for a bath, but declined pain medicine. The… Continue Reading Day 712/84

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, kytril, marriage, nausea, platelets, relapse, spleen11 Comments

Day 711/83

Laura Gilkey on December 12, 2016December 13, 2016

Hope is such a strange and morphing creature. This morning, the fog was so thick outside our window that it masked the world below. Nothing else was visible. With the… Continue Reading Day 711/83

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, CAR-T, inotuzumab, nurses, platelets, port, spleen10 Comments

Day 710/82

Laura Gilkey on December 11, 2016December 12, 2016

It appears as though yesterday’s platelet count was a fluke. Today, the number was back down to 2,000. All day yesterday I tried to shush the voice in my head… Continue Reading Day 710/82

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, marinol, morphine, nausea, spleen11 Comments

Day 709/81

Laura Gilkey on December 10, 2016December 11, 2016

Benji needed more morphine and heat packs throughout the night to stay comfortable, but these tools worked, and he slept well. He woke up in pain and wanted a hot… Continue Reading Day 709/81

Categories: Uncategorized Tags: acute lymphoblastic leukemia, inotuzumab, morphine, nausea, platelets, relapse, spleen15 Comments

Day 708/80

Laura Gilkey on December 9, 2016

There were a lot of positive things about today that I’d like to focus on. Right now I’m finding it difficult. I’m grateful for this space in which to sort… Continue Reading Day 708/80

Categories: Uncategorized Tags: acute lymphoblastic leukemia, christmas, inotuzumab, marinol, morphine, platelets, spleen8 Comments

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