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Tag: nurses

Day 769/141

Laura Gilkey on February 8, 2017May 10, 2017

Since Benjamin’s diagnosis, we have asked for guidance to make decisions for his highest good. Today we were guided in a direction we did not expect, but one that could… Continue Reading Day 769/141

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baths, fever, home, hospice, hospital, nurses, pain, palliative care, relapse, transfusions82 Comments

Day 761/133

Laura Gilkey on January 31, 2017May 10, 2017

We are settled into our new room on the fifth floor, the Pediatric Intensive Care Unit. It was scary to come here. But this is where we needed to be… Continue Reading Day 761/133

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, fever, nurses, pain, PICU, platelets, siblings, steroids, x-ray61 Comments

Day 734/106

Laura Gilkey on January 4, 2017May 13, 2017

We are still waiting for some critical information, but we also have some answers. A path is forming and it includes time at home. The biggest blessing that has come… Continue Reading Day 734/106

Categories: Uncategorized Tags: acute lymphoblastic leukemia, c. diff, CAR-T, clinical trial, hospital, nurses, platelets, relapse13 Comments

Day 711/83

Laura Gilkey on December 12, 2016December 13, 2016

Hope is such a strange and morphing creature. This morning, the fog was so thick outside our window that it masked the world below. Nothing else was visible. With the… Continue Reading Day 711/83

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, CAR-T, inotuzumab, nurses, platelets, port, spleen10 Comments

Day 612

Laura Gilkey on September 4, 2016

My cheeks hurt. What an amazing day. So many decisions made differently would have prevented this day from unfolding the way it did. This is true for every day, I… Continue Reading Day 612

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseball, friends, nursesLeave a comment

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