Benji’s little wet cough persisted in the night. He complied with my requests to inhale deeply and get his coughs out, and by the morning his chest sounded completely clear,… Continue Reading Day 284
Day 284
on Tag: methotrexate
on Day 283
on “Mucosal desquamation.” That’s the name for what is happening inside Benjamin’s body due to Methotrexate-induced Stevens Johnson Syndrome. His lips, mouth, tongue, throat and belly are all sloughing internally and… Continue Reading Day 283
Day 279
on All things considered, it was a pretty quiet day up here on the seventh floor. This is good, because we got very little sleep last night. Benji’s blood pressure has… Continue Reading Day 279
Day 278
on I couldn’t fall asleep last night. I was reviewing the events of the past ten days, and my anger was mounting. I thought about all of the tests and procedures… Continue Reading Day 278
Day 277
on We slept well last night. For the first time in many days, Benji needed no oxygen or Tylenol during his sleeping hours. Sarah and I took this as a very… Continue Reading Day 277
Day 276
on The morning was so uplifting. The afternoon was so dizzying. Now, as I settle in for another night up here on the seventh floor, I am going inward. I am… Continue Reading Day 276