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Tag: interim maintenance

Day 149

Laura Gilkey on May 30, 2015

I woke up early, just certain I was forgetting something. Basketball game? No. Hospital? No. Birthday party? NO. There was nowhere we needed to be. So I went back to… Continue Reading Day 149

Categories: Uncategorized Tags: acute lymphoblastic leukemia, interim maintenance2 Comments

Day 138

Laura Gilkey on May 19, 2015May 19, 2015

We both slept in this morning. Benjamin needed the sleep, with all of the medicine he is processing in his body. I did not fall asleep until well into the… Continue Reading Day 138

Categories: Uncategorized Tags: acute lymphoblastic leukemia, high dose methotrexate, interim maintenance, lumbar puncture, nausea3 Comments

Day 135

Laura Gilkey on May 16, 2015

Leukemia was beautifully abeyant today. It crept into the forefront only a few times: during Benjamin’s morning and evening medications, when he sat a little to close to a sneezer… Continue Reading Day 135

Categories: Uncategorized Tags: acute lymphoblastic leukemia, interim maintenance, siblings7 Comments

Day 130

Laura Gilkey on May 11, 2015May 12, 2015

I woke up crazy early to see Banyan off on his three day adventure to Sea Camp. Just before we left, Benji woke up to say goodbye to his brother. He… Continue Reading Day 130

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dehydration, insurance, interim maintenance, kytril, marinol, nausea, scopolomine5 Comments

Day 128

Laura Gilkey on May 9, 2015

We are home. Those three words alone have the potential to fill me with such joy. But today has been really, really hard. In this space I will find gratitude.… Continue Reading Day 128

Categories: Uncategorized Tags: acute lymphoblastic leukemia, interim maintenance, methotrexate, nausea, siblings6 Comments

Day 123

Laura Gilkey on May 5, 2015May 5, 2015

It’s been a very long day. I’m lying in bed next to Benjamin, who is resting peacefully. Finally. Once again I feel grateful for this blank space to sort this… Continue Reading Day 123

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, high dose methotrexate, interim maintenance, intrathecal methotrexate, leucovorin, lumbar puncture, vincristine10 Comments

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