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Tag: hospital

Day 769/141

Laura Gilkey on February 8, 2017May 10, 2017

Since Benjamin’s diagnosis, we have asked for guidance to make decisions for his highest good. Today we were guided in a direction we did not expect, but one that could… Continue Reading Day 769/141

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baths, fever, home, hospice, hospital, nurses, pain, palliative care, relapse, transfusions82 Comments

Day 734/106

Laura Gilkey on January 4, 2017May 13, 2017

We are still waiting for some critical information, but we also have some answers. A path is forming and it includes time at home. The biggest blessing that has come… Continue Reading Day 734/106

Categories: Uncategorized Tags: acute lymphoblastic leukemia, c. diff, CAR-T, clinical trial, hospital, nurses, platelets, relapse13 Comments

Day 730/102

Laura Gilkey on December 31, 2016May 13, 2017

We’re watching fireworks over the Skyway from the seventh floor, just like we did on New Year’s Eve two years ago, after our world was turned upside down by Benjamin’s… Continue Reading Day 730/102

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, appetite, family, hospital, platelets, relapse10 Comments

Day 625

Laura Gilkey on September 17, 2016

The house is quiet now. Everyone is sleeping soundly in our bed. This day went way, way too quickly. I’m thankful we were able to attend Banyan’s first football game of… Continue Reading Day 625

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, hospital, relapse7 Comments

Day 379

Laura Gilkey on January 15, 2016January 15, 2016

I looked in my rearview mirror this morning as I was driving the boys to school, and saw an expression on Benjamin’s face that made me uncomfortable. He looked absent,… Continue Reading Day 379

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hospital, methotrexate toxicity2 Comments

Day 376

Laura Gilkey on January 12, 2016January 12, 2016

I woke up feeling grateful. Tired, but grateful. I was glad to have the weight of The Letter off my chest, and glad to begin my day on the Ringling… Continue Reading Day 376

Categories: Uncategorized Tags: acute lymphoblastic leukemia, detoxification, hospital, methotrexate3 Comments

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