Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: Erwinia

Day 231

Laura Gilkey on August 20, 2015August 20, 2015

I found the clarity I needed to start this day by waking up before the sun and walking the Ringling Bridge with my dear friend. As a special treat, I… Continue Reading Day 231

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, homeschool, school, siblings3 Comments

Day 229

Laura Gilkey on August 18, 2015August 18, 2015

I woke up before the sun today to help Banyan get ready for yet another adventure. He was invited to drift down the Rainbow River in an inner tube, watching the fish… Continue Reading Day 229

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, homeschool, kytril, nausea, school, scopolomine, siblings, vincristine2 Comments

Day 228

Laura Gilkey on August 17, 2015August 18, 2015

This blank space. The rain falling. The kava tea in my mug. All of these things will conspire to reconstruct the day, to paint it with peace and gratitude, and… Continue Reading Day 228

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia, siblings, vincristine4 Comments

Day 227

Laura Gilkey on August 16, 2015

Benji’s counts continue to drop. There are more bruises today, and he’s still quite pale, but he feels terrific. He played with friends nearly all morning. He splashed and swam… Continue Reading Day 227

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, neutropenia, school, transfusion, vincristine1 Comment

Day 224

Laura Gilkey on August 13, 2015August 13, 2015

It seemed like there was a sort of dissonance in the air right from the starting gate today. There was tension between Benji and me, between Banyan and Michael; even the… Continue Reading Day 224

Categories: Uncategorized Tags: acute lymhoblastic leukemia, cytarabine, discipline, Erwinia, vincristineLeave a comment

Day 222

Laura Gilkey on August 11, 2015August 11, 2015

Banyan promised me last night that he’d join me for a sunrise bridge walk, and he made good on his word. The thought of waking so early again any time… Continue Reading Day 222

Categories: Uncategorized Tags: acute lymphoblastic leukemia, asparaginase, asparagine, cytarabine, Erwinia2 Comments

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content