Benjamin was really tired last night, and really tired this morning. It’s to be expected after what his body went through yesterday. When he did get out of bed, we… Continue Reading Day 30
Day 30
on Tag: dexamethasone
on Day 28
on Goodbye, dexamethasone. Goodbye, third breakfasts. Goodbye, extreme mood swings. I nervously bid you all farewell as we prepare for the next chapter in Benjamin’s treatment. Tomorrow is a huge day.… Continue Reading Day 28
Day 27
on Once again I find myself so grateful for this space, this empty white screen. This day held so much beauty but ended with fear and pain. I need this space to rearrange things… Continue Reading Day 27
Day 26
on Two more days of Dexamethasone. I wonder how the Children’s Oncology Group determined that 28 days was the best length of time for kids to be on this steroid. Surely… Continue Reading Day 26
Day 25
on Mondays. Transition days. Back-to-everything days. Tender days. The early hours were somewhat rocky this morning. Benjamin was teary not to be able to go to Daddy’s breakfast meeting, teary not… Continue Reading Day 25
Day 18
on Day 18. Halfway through the Induction Phase. That means we have ten more days of dexamethasone during this stage of Benjamin’s treatment. In a way, it’s like a light at… Continue Reading Day 18