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Tag: Blinatumomab

Day 672/44

Laura Gilkey on November 3, 2016November 4, 2016

Benji and I woke up at shift change, but he went back to sleep almost immediately. I stayed up for the gorgeous sunrise. When he woke for the day a… Continue Reading Day 672/44

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, fever, immunotherapy, relapse3 Comments

Day 671/43

Laura Gilkey on November 2, 2016November 3, 2016

Benji’s Blinatumomab began its slow drip at 5:12 this morning. Twenty hours in, and so far, so good. It seems like such a mundane phrase for such a big day.… Continue Reading Day 671/43

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow transplant, Cytokines, dexamethasone, fever, immunotherapy, radiation, relapse, steroids4 Comments

Day 670/42

Laura Gilkey on November 1, 2016November 2, 2016

We’re all moved in up here on the 7th floor. I hope to get some sleep tonight, but my heart is beating too quickly for that to happen just yet. Benji’s… Continue Reading Day 670/42

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, immunotherapy, relapse9 Comments

Day 669/41

Laura Gilkey on October 31, 2016October 31, 2016

Michael woke us all up this morning to watch the sun rise over the Atlantic Ocean. I’m so thankful he did. I have tried for 669 days to put into… Continue Reading Day 669/41

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, family, friends, immunotherapy, relapse3 Comments

Day 666/38

Laura Gilkey on October 28, 2016October 29, 2016

Huge ups and huge downs today. I’m choosing to focus on the ups as much as I can. The downs are starting to make me feel numb. I don’t want… Continue Reading Day 666/38

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, Cytokines, immunotherapy, make-a-wish, relapse, steroids6 Comments

Day 665/37

Laura Gilkey on October 27, 2016October 28, 2016

At the end of days like this, when I come to this space, I find an exhaustion that permeates everything. I want to collapse but I need to sort things out.… Continue Reading Day 665/37

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, broviac, make-a-wish, platelets, relapse, remission6 Comments

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