Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: allopurinol

Day 667/39

Laura Gilkey on October 29, 2016October 29, 2016

We saw a porpoise from our campsite this morning before I’d even finished my first cup of coffee. Benji’s camper is parked just a few yards from the Indian River,… Continue Reading Day 667/39

Categories: Uncategorized Tags: acute lymphoblastic leukemia, allopurinol, CMMRD, family, relapse, vacation4 Comments

Day 645/17

Laura Gilkey on October 7, 2016

Benjamin was super tired this morning. He slept in later than he has since we’ve been here. I figured after yesterday’s diuretic episode he was probably pretty depleted and needed… Continue Reading Day 645/17

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, allopurinol, Erwinia, relapse, schoolLeave a comment

Day 624

Laura Gilkey on September 16, 2016September 16, 2016

They found leukemia blasts in Benjamin’s blood today. I hate that I am typing this right now. I’ve only recently stopped shaking enough to do so. The details of the… Continue Reading Day 624

Categories: Uncategorized Tags: acute lymphoblastic leukemia, allopurinol, bone marrow aspirate, CMMRD, kidneys, MRI, platelets, relapse22 Comments

Sidebar

Footer Content