Today was like one long roller coaster. My stomach hasn’t quite recovered. Things are quiet and peaceful now, and Benjamin is soundly sleeping. For that I am grateful. We woke… Continue Reading Day 749/121
Day 749/121
on Tag: acute lymphoblastic leukemia
on Day 748/120
on Benjamin and I woke up during the morning blood draw. It was still dark. Our nurse had to do a cap change on Benjamin’s IV line because he got transfusions… Continue Reading Day 748/120
Day 747/119
on We’re back on the seventh floor. It’s where we need to be right now. I’ve felt terrified, angry, guilty, relieved, and grateful today. Sitting here to write this feels exhausting,… Continue Reading Day 747/119
Day 746/118
on This has been our longest stretch away from the hospital since October. It’s been sweet, nourishing, comforting, and necessary. And I am so ready for it to end. Benjamin needs… Continue Reading Day 746/118
Day 745/117
on The ebbing and flowing continues on this gorgeous Sunday. Benjamin needed no morphine, no Kytril, and no vomit basin today. These are all blessings. It’s also a blessing that I have… Continue Reading Day 745/117
Day 744/116
on Benji continued his pattern of ebbs and flows today. He took many baths, used his hot water bottle, napped and rested. He had one dose of morphine for pain and one… Continue Reading Day 744/116