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Category: Uncategorized

Day 446

Laura Gilkey on March 22, 2016

Today, our favorite baseball team, the Tampa Bay Rays, had the honor of playing the Cuban national team as part of a diplomatic and highly publicized trip by President Obama… Continue Reading Day 446

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseball, exhaustion1 Comment

Day 445

Laura Gilkey on March 21, 2016

  I saw the first swallowtail kite of the season today. Benji said he saw one fly over his baseball game on Saturday. They’re right on time here at the… Continue Reading Day 445

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, prednisone, rainbow stars, school, siblings, steroidsLeave a comment

Day 444

Laura Gilkey on March 20, 2016

Benji’s steroid pulse ended today. He’s rocking his typical Prednisone look: red face, puffy cheeks and belly, warm skin, wide eyes. He fluctuates between sweetness, hunger, and dramatic upset. But mostly… Continue Reading Day 444

Categories: Uncategorized Tags: acute lymphoblastic leukemia, prednisone, steroidsLeave a comment

Day 443

Laura Gilkey on March 20, 2016

Saturdays in spring are sports days. It feels good to be back in this groove. We were on our way to the ball fields as the sun rose. Just before… Continue Reading Day 443

Categories: Uncategorized Tags: acute lymphoblastic leukemia, prednisone, septra, sports, steroidsLeave a comment

Day 442

Laura Gilkey on March 18, 2016

Today was the last school day off for Spring Break, and we made the most of it. Lots of dips in our neighbors’ pool, a lovely gathering with friends at… Continue Reading Day 442

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, siblings, steroidsLeave a comment

Day 441

Laura Gilkey on March 17, 2016

Benjamin had a sweaty, steroid-y, fitful night’s sleep. His body felt weak and tired after yesterday’s late night, and he wound up in bed with us. I’m thankful for Spring… Continue Reading Day 441

Categories: Uncategorized Tags: acute lymphoblastic leukemia, mania, school, steroidsLeave a comment

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