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Category: Uncategorized

Day 668/40

Laura Gilkey on October 30, 2016

I don’t want this to end. I’m feeling such deep gratitude for these special days and nights, and for these people, for whom the love in my heart bursts forth… Continue Reading Day 668/40

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, relapse, vacation4 Comments

Day 667/39

Laura Gilkey on October 29, 2016October 29, 2016

We saw a porpoise from our campsite this morning before I’d even finished my first cup of coffee. Benji’s camper is parked just a few yards from the Indian River,… Continue Reading Day 667/39

Categories: Uncategorized Tags: acute lymphoblastic leukemia, allopurinol, CMMRD, family, relapse, vacation4 Comments

Day 666/38

Laura Gilkey on October 28, 2016October 29, 2016

Huge ups and huge downs today. I’m choosing to focus on the ups as much as I can. The downs are starting to make me feel numb. I don’t want… Continue Reading Day 666/38

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, Cytokines, immunotherapy, make-a-wish, relapse, steroids6 Comments

Day 665/37

Laura Gilkey on October 27, 2016October 28, 2016

At the end of days like this, when I come to this space, I find an exhaustion that permeates everything. I want to collapse but I need to sort things out.… Continue Reading Day 665/37

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, broviac, make-a-wish, platelets, relapse, remission6 Comments

Day 664/36

Laura Gilkey on October 26, 2016

Today was the day Michael and I set aside to take care of business. We divided and conquered. He worked from home and only went to one meeting, helping me take… Continue Reading Day 664/36

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, broviac, immunotherapy, relapse2 Comments

Day 663/35

Laura Gilkey on October 25, 2016October 25, 2016

Less than 24 hours after being discharged from the hospital, Benjamin and the rest of us were on a boat on Sarasota Bay, catching one fish after another. It was… Continue Reading Day 663/35

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dasatanib, family, relapse4 Comments

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