We headed back up to All Children’s today, this time for a follow-up visit with Benjamin’s cardiologist after the echocardiogram he had in the hospital. These are a matter of… Continue Reading Day 32
Day 32
on Category: Uncategorized
on Day 31
on What a nice, relaxing, happy, restful Sunday. I’m so grateful. We began the day with a bountiful and delicious family brunch. In the afternoon, Michael and Benji took a long… Continue Reading Day 31
Day 30
on Benjamin was really tired last night, and really tired this morning. It’s to be expected after what his body went through yesterday. When he did get out of bed, we… Continue Reading Day 30
Day 29
on All four of us woke up before our alarms this morning. Funny how that happens on big days. We dropped sweet Banyan off at school and headed over the Sunshine Skyway… Continue Reading Day 29
Day 28
on Goodbye, dexamethasone. Goodbye, third breakfasts. Goodbye, extreme mood swings. I nervously bid you all farewell as we prepare for the next chapter in Benjamin’s treatment. Tomorrow is a huge day.… Continue Reading Day 28
Day 27
on Once again I find myself so grateful for this space, this empty white screen. This day held so much beauty but ended with fear and pain. I need this space to rearrange things… Continue Reading Day 27