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Category: Uncategorized

Day 740/112

Laura Gilkey on January 10, 2017May 13, 2017

High highs and low lows today. Sunrises and sunsets. The comforts of home and the realities of leukemia. For the first time in far too long, my day began on… Continue Reading Day 740/112

Categories: Uncategorized Tags: acute lymphoblastic leukemia, home, inotuzumab, morphine, pain, platelets, relapse, spleen9 Comments

Day 739/111

Laura Gilkey on January 9, 2017May 13, 2017

Benji is sleeping next to me. He is pleasantly exhausted from a long, busy day that went very well. Benji was a little nervous this morning and his tummy hurt.… Continue Reading Day 739/111

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, clinic, clinical trial, home, inotuzumab, nutrition, relapse, stomach pain11 Comments

Day 738/110

Laura Gilkey on January 8, 2017May 13, 2017

On the coldest morning of the year, by far, Benjamin begged his daddy to take him fishing. So that’s what they did. We layered him up nice and snug, I kissed… Continue Reading Day 738/110

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood, clinic, relapse, transfusion9 Comments

Day 737/109

Laura Gilkey on January 7, 2017May 13, 2017

It sure was nice to make breakfast in my own kitchen this morning. Benjamin woke up feeling strong. He was hungry and ready for action. He was excited to eat, but… Continue Reading Day 737/109

Categories: Uncategorized Tags: acute lymphoblastic leukemia, CAR-T, CMMRD, home, PD-1, relapse, stomach pain10 Comments

Day 736/108

Laura Gilkey on January 6, 2017May 13, 2017

It was so good to be home today. Benjamin had a day of high highs and low lows. When he felt well, he was so happy. When he felt poorly,… Continue Reading Day 736/108

Categories: Uncategorized Tags: acute lymphoblastic leukemia, anger, blood, relapse, stomach pain9 Comments

Day 735/107

Laura Gilkey on January 5, 2017May 13, 2017

We are home. Everything feels pretty overwhelming right now. So many emotions today and so much uncertainty ahead. Home is the word and the feeling and the place I am… Continue Reading Day 735/107

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blinotumomab, CAR-T, home, inotuzumab, platelets, relapse, siblings, spleen11 Comments

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