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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 269

Laura Gilkey on September 27, 2015

In my notes last night I wrote, “2:17am, bath 6, so tired.” That’s all. Last night was the third in a row of bath after bath and unsuccessful attempts to… Continue Reading Day 269

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, antibiotics, bacteria4 Comments

Day 268

Laura Gilkey on September 26, 2015September 26, 2015

It was another sleepless night last night. Benji and I finally settled into sleep after midnight. We were up again for warm baths at 1:30am, 2:00am and 2:30am. I was… Continue Reading Day 268

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, Clindamycin, creatinine, fever, kidneys, methotrexate6 Comments

Day 267

Laura Gilkey on September 25, 2015September 25, 2015

Benji woke up again in the middle of the night. He was in and out of the bathtub, his tummy hurting badly, with desperation and exhaustion in his eyes. Finally… Continue Reading Day 267

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, kytril, marinol, methotrexate, nausea, probiotics1 Comment

Day 266

Laura Gilkey on September 25, 2015

I woke up exhausted this morning, but grateful that I decided to sit with the decision of whether or when to talk to Benjamin about Hudson’s passing. I felt very clear… Continue Reading Day 266

Categories: Uncategorized Tags: acute lymphoblastic leukemia, methotrexate, nausea, vincristine5 Comments

Day 265

Laura Gilkey on September 23, 2015September 24, 2015

Hudson passed away last night. God I hate typing those words. I found out this morning as I was driving my children to school, scrolling through Facebook at a red… Continue Reading Day 265

Categories: Uncategorized Tags: acute lymphoblastic leukemia, methotrexate, school, vincristine2 Comments

Day 264

Laura Gilkey on September 22, 2015September 22, 2015

Benjamin has made his return to the baseball field. This has been a very, very good day. I won’t lie, mornings are usually a struggle. But this morning should have won… Continue Reading Day 264

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