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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 281

Laura Gilkey on October 9, 2015October 9, 2015

We had a very sleepy morning here on the seventh floor. We both slept well last night but woke up frequently. Our night nurse was less experienced than her colleagues,… Continue Reading Day 281

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, acute renal injury, creatinine, liver, mucositis, Stevens Johnson Syndrome3 Comments

Day 280

Laura Gilkey on October 8, 2015October 8, 2015

Benji and I slept well. He woke up often but went back to sleep easily once I’d refreshed his water and put a new cold compress on his chest. He… Continue Reading Day 280

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, antibiotics, fever, mucositis, Stevens Johnson Syndrome6 Comments

Day 279

Laura Gilkey on October 7, 2015October 7, 2015

All things considered, it was a pretty quiet day up here on the seventh floor. This is good, because we got very little sleep last night. Benji’s blood pressure has… Continue Reading Day 279

Categories: Uncategorized Tags: acute lymphoblastic leukemia, burn, creatinine, methotrexate, mucositis9 Comments

Day 278

Laura Gilkey on October 7, 2015October 7, 2015

I couldn’t fall asleep last night. I was reviewing the events of the past ten days, and my anger was mounting. I thought about all of the tests and procedures… Continue Reading Day 278

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, leucovorin, methotrexate, mucositis, platelets9 Comments

Day 277

Laura Gilkey on October 5, 2015October 5, 2015

We slept well last night. For the first time in many days, Benji needed no oxygen or Tylenol during his sleeping hours. Sarah and I took this as a very… Continue Reading Day 277

Categories: Uncategorized Tags: acute lymphoblastic leukemia, acute renal injury, bacteria, leucovorin, methotrexate, mucositis, rash, Stevens Johnson Syndrome7 Comments

Day 276

Laura Gilkey on October 5, 2015October 5, 2015

The morning was so uplifting. The afternoon was so dizzying. Now, as I settle in for another night up here on the seventh floor, I am going inward. I am… Continue Reading Day 276

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, bacteria, methotrexate, neutropenia, port, siblings5 Comments

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