I’ve decided to step away from my online moms’ group for a little while. This has happened before. It ebbs and flows. I love those women fiercely, but the sudden… Continue Reading Day 497
Day 496
I gave Benjamin his Methotrexate immediately after dinner last night. I waited until bedtime to give him his 6MP and the first dose of his new steroid pulse. The staggering… Continue Reading Day 496
Day 495
The sky was amazing at sunrise from my vantage point on the Ringling Bridge. I came home to prepare breakfast, get Banyan off to the bus stop, and apply numbing… Continue Reading Day 495
Day 494
Today was so busy I didn’t even snap a photo. Busy in that wonderfully normal way. Tomorrow we will break away from this reality and return to All Children’s Hospital.… Continue Reading Day 494
Day 493
Last Mother’s Day, we went to the emergency room for fluids. Benjamin was feeling terribly and all I wanted was for him to have some extra hydration. This Mother’s Day… Continue Reading Day 493
Day 492
Today was so fulfilling. I was surrounded by blessings from morning to night. Yesterday’s sadness felt well processed, and the exhaustion that followed was handled by a good night’s sleep.… Continue Reading Day 492