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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 497

Laura Gilkey on May 12, 2016

I’ve decided to step away from my online moms’ group for a little while. This has happened before. It ebbs and flows. I love those women fiercely, but the sudden… Continue Reading Day 497

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseball, community, siblings, steroids1 Comment

Day 496

Laura Gilkey on May 11, 2016

I gave Benjamin his Methotrexate immediately after dinner last night. I waited until bedtime to give him his 6MP and the first dose of his new steroid pulse. The staggering… Continue Reading Day 496

Categories: Uncategorized Tags: acute lymphoblastic leukemia, siblings, steroids1 Comment

Day 495

Laura Gilkey on May 10, 2016

The sky was amazing at sunrise from my vantage point on the Ringling Bridge. I came home to prepare breakfast, get Banyan off to the bus stop, and apply numbing… Continue Reading Day 495

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, infusion center, rainbow stars, vincristine1 Comment

Day 494

Laura Gilkey on May 9, 2016

Today was so busy I didn’t even snap a photo. Busy in that wonderfully normal way. Tomorrow we will break away from this reality and return to All Children’s Hospital.… Continue Reading Day 494

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, steroids, vincristine1 Comment

Day 493

Laura Gilkey on May 8, 2016

Last Mother’s Day, we went to the emergency room for fluids. Benjamin was feeling terribly and all I wanted was for him to have some extra hydration. This Mother’s Day… Continue Reading Day 493

Categories: Uncategorized Tags: acute lymphoblastic leukemia, familyLeave a comment

Day 492

Laura Gilkey on May 8, 2016May 8, 2016

Today was so fulfilling. I was surrounded by blessings from morning to night. Yesterday’s sadness felt well processed, and the exhaustion that followed was handled by a good night’s sleep.… Continue Reading Day 492

Categories: Uncategorized Tags: acute lymphoblastic leukemia, maintenanceLeave a comment

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