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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

After.

Laura Gilkey on February 12, 2017May 10, 2017

This has been the hardest day. Even yesterday, the day my Benjamin died, was easier than this. Today he wasn’t here. And I wanted him to be. So badly. I… Continue Reading After.

Categories: Uncategorized Tags: death, gratitude70 Comments

Day 772/144

Laura Gilkey on February 11, 2017May 10, 2017

  I knew that Benjamin would die today. I knew that I would walk outside and feel the Florida February sunshine on my skin, and he wouldn’t, and I would… Continue Reading Day 772/144

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death169 Comments

Day 771/143

Laura Gilkey on February 10, 2017May 10, 2017

The energy in the room has shifted once again. This happened as the day progressed; this morning, Benjamin walked to the bathroom. This morning, Benjamin was still drinking small sips… Continue Reading Day 771/143

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death

Day 770/142

Laura Gilkey on February 9, 2017May 10, 2017

Comments will be disabled for the foreseeable future as our family focuses on Benjamin’s peaceful passage. Your love and prayers are acutely felt and deeply appreciated. There has been another… Continue Reading Day 770/142

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death, family, love, platelets, relapse, research, siblings

Day 769/141

Laura Gilkey on February 8, 2017May 10, 2017

Since Benjamin’s diagnosis, we have asked for guidance to make decisions for his highest good. Today we were guided in a direction we did not expect, but one that could… Continue Reading Day 769/141

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baths, fever, home, hospice, hospital, nurses, pain, palliative care, relapse, transfusions82 Comments

Day 768/140

Laura Gilkey on February 7, 2017May 10, 2017

“Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.” ~Thich Nhat… Continue Reading Day 768/140

Categories: Uncategorized Tags: acute lymphoblastic leukemia, clinical trial, fear, fever, home, platelets, port, relapse, steroids64 Comments

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