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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 35

Laura Gilkey on February 5, 2015February 5, 2015

We felt very loved today. There hasn’t been a day on this journey that we haven’t felt this way, but today, especially, we felt it. So many messages, texts, and… Continue Reading Day 35

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone4 Comments

Day 34

Laura Gilkey on February 4, 2015February 4, 2015

We finally got the results of Benjamin’s bone marrow aspirate this morning. It was not the news we wanted to hear. We were looking and hoping for a Minimal Residual… Continue Reading Day 34

Categories: Uncategorized Tags: acute lymphoblastic leukemia, ara C, bone marrow aspirate, consolidation, cytaribine, cytoxin, MRD22 Comments

Day 33

Laura Gilkey on February 3, 2015February 3, 2015

Tom Petty said it best. The waiting is the hardest part. After two rescheduled phone meetings tonight, we learned that our oncology team is still awaiting the results of Friday’s bone marrow aspirate. We… Continue Reading Day 33

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethason, minimal residual disease, MRD, nutrition9 Comments

Day 32

Laura Gilkey on February 2, 2015February 2, 2015

We headed back up to All Children’s today, this time for a follow-up visit with Benjamin’s cardiologist after the echocardiogram he had in the hospital. These are a matter of… Continue Reading Day 32

Categories: Uncategorized Tags: acute lymphoblastic leukemia, delayed intensification, patent ductus arteriosus, ultrasound9 Comments

Day 31

Laura Gilkey on February 1, 2015February 1, 2015

What a nice, relaxing, happy, restful Sunday. I’m so grateful. We began the day with a bountiful and delicious family brunch. In the afternoon, Michael and Benji took a long… Continue Reading Day 31

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation, dexamethasone, induction11 Comments

Day 30

Laura Gilkey on January 31, 2015January 31, 2015

Benjamin was really tired last night, and really tired this morning. It’s to be expected after what his body went through yesterday. When he did get out of bed, we… Continue Reading Day 30

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, fever, mental health7 Comments

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