Our path looks much more clear today. The National Institutes of Health considers Benjamin a viable candidate for their CAR-T clinical trial targeting the CD22 protein. It’s such a relief to… Continue Reading Day 743/115
Day 743/115
on on Day 742/114
on Our intention was unmistakable. A clear path toward Benjamin’s perfect healing. Today we heard the words “no clear path,” and “imperfect options.” I realized today that we aren’t waiting for a path to appear… Continue Reading Day 742/114
Day 741/113
on Today was a really hard day. Benjamin woke up in pain, with his spleen hurting as badly as it did last night. I gave him a dose of morphine and… Continue Reading Day 741/113
Day 740/112
on High highs and low lows today. Sunrises and sunsets. The comforts of home and the realities of leukemia. For the first time in far too long, my day began on… Continue Reading Day 740/112
Day 739/111
on Benji is sleeping next to me. He is pleasantly exhausted from a long, busy day that went very well. Benji was a little nervous this morning and his tummy hurt.… Continue Reading Day 739/111
Day 738/110
on On the coldest morning of the year, by far, Benjamin begged his daddy to take him fishing. So that’s what they did. We layered him up nice and snug, I kissed… Continue Reading Day 738/110