All four of us woke up before our alarms this morning. Funny how that happens on big days. We dropped sweet Banyan off at school and headed over the Sunshine Skyway… Continue Reading Day 29
Author: Laura Gilkey
Day 28
Goodbye, dexamethasone. Goodbye, third breakfasts. Goodbye, extreme mood swings. I nervously bid you all farewell as we prepare for the next chapter in Benjamin’s treatment. Tomorrow is a huge day.… Continue Reading Day 28
Day 27
Once again I find myself so grateful for this space, this empty white screen. This day held so much beauty but ended with fear and pain. I need this space to rearrange things… Continue Reading Day 27
Day 26
Two more days of Dexamethasone. I wonder how the Children’s Oncology Group determined that 28 days was the best length of time for kids to be on this steroid. Surely… Continue Reading Day 26
Day 25
Mondays. Transition days. Back-to-everything days. Tender days. The early hours were somewhat rocky this morning. Benjamin was teary not to be able to go to Daddy’s breakfast meeting, teary not… Continue Reading Day 25
Day 24
Benjamin felt really good today. Kind, energetic, hungry and cracking jokes all day long. I was thankful for the timing, as big brother Banyan had a chess tournament this afternoon. He… Continue Reading Day 24