Benjamin’s fever took a while to come down last night. He was burning up. When it finally came down we were able to catch a few hours of sleep. His… Continue Reading Day 714/86
Day 714/86
on Tag: transfusion
on Day 706/78
on Benjamin has received his first dose of Inotuzumab. Its administration went smoothly, and he tolerated it well. We both slept as long as we could this morning. We tried to… Continue Reading Day 706/78
Day 705/77
on I am ending another long day with gratitude. There have been moments of exhaustion and moments of fear, but overwhelmingly, the things that could go well, did go well. On… Continue Reading Day 705/77
Day 702/74
on Benjamin had another great day today. We deeply missed the other half of our foursome, but we enjoyed our hospital family, and soaked up a bit of Saturday sunshine in… Continue Reading Day 702/74
Day 701/73
on Look at the boy in front of you. Today I took this advice. This morning, when I heard the nurses come in for shift change, I didn’t jump up to… Continue Reading Day 701/73
Day 700/72
on This morning’s labs were frankly terrifying. Benji’s white cell count and neutrophil count doubled again, and his blasts went up to 73%. His absolute blast cell count is so high.… Continue Reading Day 700/72