Benjamin is beginning his bravest work, and we have the honor of supporting him through it. Today was sweet and sad and slow and steady. Benjamin was surrounded by his… Continue Reading Day 763/135
Day 763/135
on Tag: oxygen
on Day 762/134
on Energy can neither be created nor destroyed. ~First Law of Thermodynamics Benjamin, our brave, sparkly child, is dying. I realized today that I never actually believed this would happen. Not… Continue Reading Day 762/134
Day 759/131
on Rhythm. A word and an idea I’ve always loved. Tonight, our rhythms feel very off. I’m listening to Benjamin breathe through an oxygen mask while he sleeps. His breaths are… Continue Reading Day 759/131
Day 756/128
on The construction crew of the new hospital research building worked all night long last night, pouring the concrete slab on the top floor. Every time Benjamin woke up to urinate,… Continue Reading Day 756/128
Day 52
on Last night was a long one. Benjamin’s fever spiked again, his heart rate was too fast, and his oxygen was too low. I couldn’t keep my eyes off the monitors.… Continue Reading Day 52