We’re watching fireworks over the Skyway from the seventh floor, just like we did on New Year’s Eve two years ago, after our world was turned upside down by Benjamin’s… Continue Reading Day 730/102
Day 730/102
on Tag: family
on Day 723/95
on We. Are. Home. Until Monday morning, I will relish every sound and every smell and every breath in this house. The decision to come home was very much a last-minute one.… Continue Reading Day 723/95
Day 721/93
on Today was Benjamin Wilson Gilkey’s 9th birthday. There have been so many emotions flowing through this room today. I’m exhausted and I’m grateful. Next to me is a boy who… Continue Reading Day 721/93
Day 717/89
on Today was a very good day. It didn’t start that way. We were up before 5am with Benjamin in great abdominal pain. He asked for heat packs and cold packs… Continue Reading Day 717/89
Day 716/88
on I didn’t want to look at this morning’s numbers. I tried so hard last night to focus on Benji’s slow and steadily declining leukemia blasts, but this morning I was… Continue Reading Day 716/88
Day 699/71
on Benji and I slept soundly in our new bed, in our new room on the seventh floor. His labs were stable again this morning. His neutrophil and white blood cell… Continue Reading Day 699/71